XO, Isabel

Hope and Courage: Our Surrogacy Journey

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RESOLVE Walk of Hope 2013, Northern California

September 22, 2013Leave a Comment

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On Saturday, September 21, 2013 a group of our friends and family joined us on Team XO for RESOLVE.org’s inaugural Walk of Hope. There were a few across the country, and we attended the one in Sacramento, CA (Northern California).

Together, our team ranked #4 raising just over $1,300. One of our team members was ranked #2 overall in the Top Participants category. GO Team XO!

Team XO

Each person that walked on Team XO has experienced or is directly connected to someone that has experienced infertility. It was nice to have this support while we all joined together. The walk’s message was simple: No one with infertility should walk alone.

And, it seems simple. Yet, it can be a very agonizing battle between being able to open up and share or simply hiding away in privacy. I mean, everyone talks about pregnancy, childbirth and babies. We don’t talk about HOW babies are made. Well, except for those awkward conversations you might remember with your own parents, or dread having to have with your own children. Or, from that permission slip you had to send home to your parents so that you could go to school later that week to learn about puberty AND how babies are made.  But, in our adult worlds and conversations, we don’t often talk about how babies are made. Frankly, not many of our friends need to know about our intimate moments. How, then, do you bring up the topic of infertility? When all your intimate moments lead to negative pregnancy tests? When all that baby dancing leads to tears when your period shows up? No, we don’t talk about that. When someone achieves pregnancy, one of our first questions isn’t “how long did that take you!?” No. We just assume that the baby was made the old-fashioned way. After only trying once. Just like how we’d like to imagine our parents with regards to our own conceptions.

That’s just not the case for the 1 in 8 couples that are dealing with infertility. It’s simply not the case. More and more men and women are sharing their stories. It’s easier now with the help of blogs, Twitter feeds, Facebook and now even Pinterest. Oh, and you can share and still maintain anonymity. How much easier is that? As more and more are opening up about their family-building journeys their openness is allowing us to learn a lot about the emotional and physical toll that infertility takes for those affected men and women and the friends and family that love and support them. Yet, there are still so many that suffer alone. That cry alone. That swing between a myriad of emotions about their own fertility. Some have to weigh their pain over others that they know. Some negotiate with their emotions, that they should be satisfied with already having a child or two and for feeling as though they are selfish for wanting more children. There are so many different scenarios and ways to cope and just “deal” and I think you get the point. No one with infertility should walk alone.

If you’re someone that feels like you’re walking alone; you’re not. If you’re not ready to share your story with the world, try sharing it with someone you trust. To unburden yourself with your secret, you will lift a mountain off of your shoulders. Chances are that the person you share with knows someone that has experienced infertility. Chances are it’s her (or him). I mean, it’s 1 in 8. That’s almost a game of Six Degrees of Kevin Bacon (okay, okay, fine, Six Degrees of Separation).

How you choose to unburden yourself is up to you. Try it, though. You’ll be surprised at the support that is available to you. Maybe it’s your best friend. Or, maybe it’s more official, like a therapist or a coach or a member of the clergy. The point is, infertility hurts. Staying silent can hurt you, too. Feeling alone can make you feel worse about your situation and you shouldn’t feel alone.

Here are just some ideas to break the silence or to begin to unburden yourself about infertility:

– Talk to your partner, perhaps both of you need something from each other
– Start a personal diary or journal, art journals are great, too
– Write a blog. Don’t feel like telling the world who you are? Do it anonymously
– Talk to a friend or family member that you trust
– Reach out to a stranger! No, really! Have you read a blog about someone that is sharing a story similar to yours? Reach out to him or her
– Look for a counselor or life coach
– Look for support groups, there are many available in your local areas and tons of them online
– Create an anonymous Twitter account and tweet your heart out
– Create a private board on Pinterest and share all the images that mean something to you
– Join some private groups on Facebook or create your own and invite a few close friends to support you through this
– Create art (I prefer photography and mixed media)

Have any other ideas? Share them.

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Filed Under: Advocate, Infertility, Resources Tagged: hope, infertility awareness, resources, talk about infertility

Making peace with the answers

September 20, 20134 Comments

We were waiting on one final piece to close out testing for Leo, and that’s the pathology on the placenta.

Unfortunately, there wasn’t much they could tell us, as when there is a fetal demise (your baby has died), nature begins to take course. That means that my placenta had already begun to disintegrate and there wasn’t much they could do with it. They didn’t note anything significant in the pathology and therefore it means we won’t know with 100% certainty what caused Leo’s death. We knew that all along, and in most cases, you don’t always have 100% certainty to explain a miscarriage. There are other things that we suspect happened, for now, they’re all just theoretical.

I’m okay with that. I’m at peace with that.

I had been preparing myself for a while as to what my response would be, given the many outcomes that the test results would provide. They ranged from relief, anger, guilt and back to relief.

I feel relieved. For whatever reason, I feel that Leo is at rest. He was loved for every moment of his life. He never knew anything more than the comfort of that.

I feel relief because, although we only know a small part of the puzzle, it was enough to know that things turned out for the best. I feel some sense of guilt even saying that, but I feel that way in my heart. He had a rough little start, the odds were never in his favor. Part of that is my fault, and most of it is not. I say that it’s my fault, only because I know I could have been in better health at the time of conception. I have to stop playing the game of What-If’s and that’s what I plan to do. I’ve stopped blaming myself for feeling like I failed him and failed myself. I did my best. I did more than my best. I forgive myself for feeling like I was partly to blame. I forgive myself.

I know better now and my life, instead of being filled with despair, is filled with hope. This is what I’m choosing to do and it brings me great happiness to choose hope over despair. My having Leo and losing Leo has left an imprint on my heart and I wouldn’t have had it any other way.

Leo lived. Leo died. Leo is my baby and as long as I’m living, my baby he’ll be.

XO, Isabel

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Filed Under: Leo, Miscarriage, Procedures Tagged: closure, hope, leo, pathology, results, tests

YY Syndrome (47,XYY)

September 19, 20133 Comments

A couple of things happened today. I received my new license from the DMV. I received Leo’s genetic testing results. Two more items to mark off my CLOSURE LIST.

I received the call from the Genetic Counselor letting us know that they had received the results from Leo’s chromosome microarray testing. This test was done to determine whether or not Leo had Down Syndrome (I had screened positive in the second trimester) or any other type of chromosomal abnormality that could have caused his death. Since he was no longer alive and neither was his tissue, Amniocentesis would not have worked.

The results indicated that Leo had 47,XYY Syndrome or Jacob’s Syndrome.

XYY

What does this mean? The normal karyotype of a human contains 46 chromosomes in each cell. Then, each person inherits chromosomes that determine his or her sex. 46,XX is normal female and 46,XY is normal male. The X chromosome is passed on by the mother (ovum or egg) and the Y chromosome is passed on by the father (sperm).

In Leo’s case, he had an extra Y sex chromosome and therefore had a karyotype 47,XYY. This was a fluke and the risk of it happening again is the same as it would be with any pregnancy. It is said that 1 in 1,000 (0.1%) male births are 47,XYY.

Our Genetic Counselor explained that this type of test result does not usually end in miscarriage, unlike many other types of chromosomal abnormalities. Most men with YY Syndrome only have some minor physical differences, mainly being taller than average and typically thin. They can also have other types of differences, such as weaker muscles and bones. Some men may experience fertility issues, but otherwise have normal sexual development.

She also explained that it could also cause learning disabilities or speech problems.

Yet, from all the research I’ve done, it still doesn’t explain why Leo died.

Since my Inhibin-A level was elevated during the second trimester screening, it is more than likely that the culprit is a placental one. I’ll be following up regarding the placenta pathology test results tomorrow.

Isn’t it funny that Leo ended up with something called YY Syndrome?  This loss will always have me asking WHY?

Either way, even this little bit of the puzzle has brought me some peace. I am hoping to continue to find answers so that I can continue to build onto the hope that I hold on to so dearly.

Hope.

XO, Isabel

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Filed Under: Leo, Procedures Tagged: 47XYY, genetic testing, genetics, hope, jacob's syndrome, microarray dna, YY syndrome

I’m here, perhaps not present

August 29, 20133 Comments

I’ve not been able to muster the strength to write anything. I’ve written to some privately and have spoken to others.

The truth is, I’m in pain. Emotional, no doubt, but, physical, too. It’s as if every inch of my physical self is manifesting the pain that I feel in my heart. I go through a range of emotions, from sadness to anger. Feeling alone and feeling suffocated. Wanting to move forward and pretend none of this happened. But, it did. I am working through it and it will take time. I know this. I know it all. It doesn’t make it easier to feel. There is only so much Ibuprofen can do.

It will get better, I promise me that.

XO, Isabel

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Filed Under: Daily, Miscarriage Tagged: grief, hope, loss, pain, sadness

This time it was different

August 20, 20136 Comments

This time it was different. My previous losses always happened so very early. Before the world could know. Before my body changed outwardly enough to even have a clue as to my delicate state.

This time it was different. This time, we did all the “right” things and waited until we were past the first trimester before announcing to the world (AKA Facebook) that we were expecting.

This time it was different. I picked out 3 pairs of shoes out so that I could photograph them and add my own creative twist on our pregnancy announcement.

This time it was different. I felt morning sickness. I felt him move. We saw his little heartbeat. It was strong. It was as strong as a Lion’s.

This time it was different. We knew what we were having. All the little ones before were mostly a mystery. Only a whisper of a dream. What-ifs and what-nots.

This time it was different. I had a bump. A very real bump. I had only started to embrace this dream. Embrace my growing belly and who was inside.

This time it was different. I went on a shopping spree for maternity clothes. My shirts were too short to cover the stretchy panel of my maternity jeans. I had to put them all away. I think “maybe I can use them next time” but, admit, I’m not sure if there will be a next time.

This time it was different. It’s a BOY!

This time was different. We had picked out his name. His name is Leonardo. Leo. Our son, always & forever.

BabyG_Preg_announcement_web BabyG_Preg_announcement_blue

XO, Isabel

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Filed Under: Infertility, Leo, Loss, Miscarriage, Recurrent Pregnancy Loss Tagged: hope, leo, loss, miscarriage

Hello. my name is Isabel and this blog is all about my experiences dealing with infertility, recurrent pregnancy loss, and our new adventure as intended parents in our surrogacy journey. Also, a little bit of everything else in my life. Welcome! read more...

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