XO, Isabel

Hope and Courage: Our Surrogacy Journey

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A little boy named Benjamin

September 12, 201313 Comments

One month ago on August 12, we began a journey that we hadn’t anticipated.

One month ago, we discovered that Leo’s heart stopped beating.

One month ago, we received news that our youngest nephew, Benjamin, took his first breath of life.

Our first meeting. The first smile I witnessed.

One month ago, a pendulum of grief and joy swung wildly.

I want to talk about Benjamin. A little boy, that up until close to being born, had no name. And even shortly after his birth was Benjamin No-Name, since his middle name couldn’t be decided. He’s the youngest of 4 boys, and that’s a lot of names to think up! Even still, I think he’s a Benjamin through-and-through. Even though we were hoping for names like Bruno, Barnaby or even Batman. Who wouldn’t want to be Batman!?

It was sort of a surreal day. We had received the devastating news on that Monday morning. We sent out an email to our family and closest friends about Leo’s death. It would be rough for us physically in the next few days. My sister-in-law was really supportive. She was nearing the end of her pregnancy and we feared that she would go into pre-term labor, since she had been dealing with this already. She stayed in contact most of the day. Then some time passed and I hadn’t heard from her. I thought it was strange but didn’t think too much of it. Later that night, we received a text message that she was going to be having a c-section in 45 minutes. It was already late at night. I will admit, I had hoped that Benjamin would be born the next day. And not on this Monday. I wanted him to have a cool birthday. 8/13/13. But, it wasn’t to be. He was born that night, about a half-hour before midnight.

We received late night texts with pictures of his little face and immediately exchanged the WHO-HE-LOOKS like messages. It was bittersweet, it was.

In some ways, I felt guilt for his parents having share this day with us. Because, I know they were sad for us and they were experiencing their own feelings for the birth of their son. A birth is something to be celebrated! Pictures! And all the mushy stuff that goes along with babies. Somehow it was deeply recognized that their joy also had a flip-side; our grief.

Benjamin’s birth was the first of his nephews’ that my husband had missed. He had sworn that he would always be there for the birth of any niece or nephew born into this family. I think he felt a little helpless at not being able to be there for Benjamin’s birth. He knew it would be impossible. Not only would distance keep us from attending the birth with how quickly it all transpired, but also because we had to tend to my medical and emotional needs. Everyone would understand. And they did.

Since we’re Jewish, we knew that if Benjamin was healthy enough (he was born about 5 weeks premature, but was a healthy little thing), his Brit Milah would be on the 8th day after his birth. I will admit, this frightened me. I wasn’t sure if I could be there for this event. I wasn’t sure if I was ready to face everyone. Everything was so very fresh. I had so many different feelings, but ultimately knew that out of respect and love, we would be with our family on this joyous occasion. But most of all, I never ever want Benjamin to have to ever suffer because of what happened to us. If we had stayed home, he’d be none-the-wiser, but we would know.

Unfortunately, since Benjamin was a little premature, he developed jaundice. He had to be admitted to the hospital for some light therapy and therefore his Brit would have to be delayed by a few days. I’ll admit I was a little relieved. It took all our strength to prepare ourselves to go so soon, and the extra days of processing our ordeal proved to be extraordinarily helpful.

We were excited to meet Benjamin and I did feel a little bit of guilt for not meeting him sooner. I mean, I actually photographed the birth of his older brother. I was there the moment he had taken his first breath. I had hoped to be able to do the same for Benjamin.

Prior to us going, I was in communication with my sister-in-law about how we would go about meeting Benjamin for the first time. I admitted that I thought it would be emotional and that I would cry. A lot. I pictured myself holding him and falling to pieces wondering why this had to happen to us and how I’ll never hold my own son. She was kind and offered to give us a meeting space in the privacy of their bedroom. Just my husband and his brother and the two of us, and of course, Benjamin. The offer was kind and thoughtful and I wanted that very much. I didn’t want an audience for my emotions and if I was going to cry, I wanted it to be more intimate.

We made the two-hour trip back home to be with our family and to meet Benjamin. We were invited up to the bedroom almost upon arriving, but not before receiving hugs from the family and my other three nephews. They each have their own unique understanding of our circumstance. The oldest is 16 and he well-understood what we lost. He was kind and loving and embraced us and asked us if we were okay. Our 7 year-old nephew embraced us, too. And though he didn’t say anything, I know he understood that I wasn’t pregnant anymore. The last time I saw him he kissed my belly. He almost let himself slip and did it, but he stopped himself and instead just hugged me again. Our 4 year-old nephew is blissful in innocence, as it should be. And for that, I was thankful. He gave us hugs and kisses just because we are his aunt and uncle and he was happy to see us.

We finally made it upstairs to meet Benjamin. And how sweet and tiny he was! I took him in my arms and I was in love. I thought I was going to get emotional, but I didn’t. Instead, it felt warm and peaceful. I was happy. I was happy to be there and I was happy to be his aunt. I was even happy that I got to be Leo’s mom, no matter how brief, and it was because of that brevity that I was able to appreciate this experience all the more. I didn’t want to let go of him. I would brush my finger near the side of his lips and on his cheek to see if I could coax a smile out of him, and I did. He also continued the tradition of his brothers and peed on me a few times. Those boys sure are super soakers! I took several pictures and later my sister-in-law would point out how he had on different outfits in all the photos since he had soaked through his clothes so many times.

When it was time for the ritual to begin, the Mohel asked if they’d like to do the Baby Naming Ceremony as well. They said yes and they provided his Hebrew name of Binyamin. He then asked if they had a middle name. It would seem that he was also going to be Binyamin No-Name, in Hebrew. They said they hadn’t thought of one. I spoke up, I said “You can use the middle name we had chosen for Leo’s Hebrew name — Nissim, it means Miracles. Leo was going to be Ari Nissim, in Hebrew.” Ari meaning Lion of God and Nissim meaning miracles (or wonders), for he was our Little Lion and our Miracle.

They accepted. They said yes and the ceremony went underway. I’ll spare all the details of being a witness to this ritual, but, I was there during every moment. I didn’t want to leave, so I stayed with him the entire time.

It was now time for the conclusion of the ceremony and for the Naming. Up until this point, I had maintained my composure. I had kept my emotions and tears in check. And then there was a blessing. And then they spoke Benjamin’s Hebrew name – Binyamin Nissim and then I cried. I felt deeply. We yelled MAZEL TOV! Because that’s what you do, because it’s a joyous time and LOTS OF MAZELS! And I feel a little guilty because we were crying and my sister-in-law was getting emotional. My husband was crying next to me and I wanted the room to shout their MAZELs louder. But it was a clear moment that our family was still swinging between grief and joy.

It was hearing the name being said aloud. How we had started to picture our own ceremony with our own son. How our family would witness our family being blessed. And how it was now never to be with Leo.

And now, I believe, a little part of Leo will forever live with Benjamin, if only with his name.

And Ben? I think we’re going to be good buddies.

Happy One-Month of Life, Benjamin. You are a wonderful blessing and a little Miracle. You always will be.

BN_08-2013_2

XO, Aunt Isabel

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Filed Under: Family, Judaism, Leo Tagged: Benjamin, Celebration, Family, Life

Why I don’t like the DMV

September 11, 20135 Comments

It was August 8, 2013. It was two days before my birthday and before my drivers license would expire. Yes, I procrastinated. But, I felt proud that I was going to at least get it done BEFORE it actually expired. Yay me!

I didn’t have an appointment and the line was out the door. Once I got a peek inside, I realized the line wasn’t so bad. I had gotten up earlier that day and actually used a blowdryer on my hair. I put on extra makeup, including eyeliner. I never do. I was so excited to actually take a new picture for my license because I was pregnant. I was excited to be able to show Leo my license one day and say “you were in the picture, too!” My current picture was taken just after our honeymoon and I had a nice smile and glowing, tanned skin. Both memories I was looking forward to sharing with our kid.

Back to the line. I eventually made it to the point where you’d be assigned a number. G93, I think it was. The wait wasn’t very long. I had all my paperwork ready. I was sitting down and fiddling with my phone. I was observing everyone and posted to Facebook asking if there was a site like the People of Walmart, but for the DMV. A few moments later my phone was ringing. It was a number I somewhat recognized and figured it would be important to answer. It was our Genetic Counselor. He called with some new and some “scary numbers”, as he called them. My number was called right at this very moment. I tried to see if I could put him on hold while I dealt with the clerk. I was a little bit distraught. I told the Genetic Counselor to please call me back in 10 minutes.

I completed the initial part of my paperwork and was supposed to go back and sit down and wait to be called to have my picture taken. Tears were already filling my eyes. How could I take a picture now? Instead, I left and sat in my car to wait out those minutes. He called back in 17 minutes. I remember, because I looked.  About 9 minutes of crying and anxiety. He called to tell me that our second trimester screening had come back as positive for Down Syndrome. And the rest of the story has already been told.

I’m sitting in the car, I didn’t know if I should go back in and handle the rest of the DMV transaction. I mean, how could I? I now had tear stains on my cheeks and the whatever was left of my mascara and eyeliner was hanging on by a thread. I called my husband instead. I asked him to come home and then I began sobbing. That we had received bad news. He tried his best to comfort me, and I tried my best to convince him that it was all going to be okay.  It wasn’t.

And, my license is now expired. I have to go and get that taken care of. And it’s taking every bit of my strength to make myself go. Every day I delay it. I understand why, now.

I don’t want a license photo that is just of me. It was supposed to be the both of us.

XO, Isabel

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Filed Under: Leo, Loss, Miscarriage Tagged: DMV, grief, leo, loss, photo

Why do we wait?

September 10, 20139 Comments

During the past week or so, I’ve stepped into myself. You see, I’m an introvert and I spend a lot of time in my head, with my thoughts. They quickly oscilate and would be hard to keep up with. Usually, I have an easy time of remembering things. Keeping calendars in my head. Remembering faces and names. During my pregnancy, it was the first time I had truly experienced what everyone dubs as “pregnancy brain.” I didn’t like it one bit, I’ll admit. Anyway, the point of this is because there is one thought that has been bothering me. And rather than keep it in my head or write it down to discuss another time, I decided to just stop what I’m doing and write about it now.

It’s about announcing pregnancy. So many times you hear someone give a newly pregnant woman the advice of “wait.” The advice is simply that you shouldn’t share the news of a new pregnancy until your second trimester. And most of us oblige. And I ask – “Why?”

Why do we wait to share such exciting news? Nowadays, we live in a world of Social Media where we live with Facebook and Twitter and INSTAgram. We want to share everything NOW. What we’re watching, how we’re feeling, what we’re eating and the color of our new nail polish. But, to share that you’re pregnant when you first find out is somehow taboo.

Why?

I understand, truly I do. As a woman that has now experienced five (5) pregnancy losses, all in different stages of pregnancy, I subscribed to this rule, mostly. But, the more miscarriages I had, the less and less I believed that this rule was actually any help at all. One could explain away the reasons for waiting to share news, and that would simply be so that we don’t have to explain to others that our pregnancy has ended, should we be met with being included in the most unfortunate of statistics; miscarriage.

But, why are we afraid to share? Why are we afraid to let people know of our loss? Do we feel shame? Do we feel embarrassment? “Oh no! I lost the baby, now everyone will think I was so stupid for sharing my news so soon, I JYNXED it!”

Bollocks!

I began to believe that I should share the news as early as I feel comfortable and with those I felt comfortable with. As much as I wanted to contain my news from others, I felt the need to share. And, yes, we did wait until our second trimester to share the news publicly via Social Media and the like. That didn’t make me any safer.

What it did prove to me is the immense support system that I have all around me. I didn’t need to apologize for my sadness and grief. I didn’t need to feel shame or embarrassment. I got to be the face of miscarriage and infertility to my family & friends. The same people that experienced joy at our happy news of expecting could also be an integral part of our healing as we announced the loss of our son. The same people that would be happy for us can also grieve with us.

And I think…what if I go through this again? What if I get pregnant again? Now waiting 13 weeks isn’t safe anymore. But is waiting until 18 weeks? What about 38 weeks? Sadly, a loss like mine and like those of countless others can happen at any time.

I refused to be paralyzed by the stigma that miscarriages should remain unspoken. That early pregnancies shouldn’t be celebrated. I’m not saying that should I ever get pregnant again that I’ll be out & about blasting the news over loudspeakers, but, I certainly won’t hide the fact that I am pregnant out of shame, fear or anxiety. I refuse to sit back and let the fear of the unknown overpower the great joy that being pregnant can be.

So, next time you are tempted to give the advice to someone, especially a daughter, daughter-in-law, sister or best friend, consider why. Revisit those reasons and consider other options. Analyze why you think she should wait to announce. Make sure it’s not because of fear.

You share your news with anyone you wish to share with. Allow those that can feel joy with you to also feel and see you through your fears. The biggest difference between sharing and not sharing is in who can be there to support you. For if you never share what happened, you will live with Unspoken Grief, and well, girl, that just isn’t fair.

XO, Isabel

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Filed Under: Infertility, Miscarriage, Recurrent Pregnancy Loss, Stillbirth Tagged: fear, miscarriage, pregnancy announcement, shame, support, the second trimester rule

Things I found #1 (Debut)

September 9, 20131 Comment

It’s no surprise, I like spending time online. I listen to music, chat with friends, watch videos and I read. Boy, do I read. I figured I’d share some of the stuff that I find interesting.

Liar, Liar! – “A new study shows that 62 per cent of us pretend to have read classic novels in order to appear more intelligent.”

Take a peek! – Look inside someone’s closet.

Boys and Their Fathers: Uncanny Portraits Blend Fathers And Sons Into A Single Person

Video: Welcome to World – Why Poverty?
““Welcome to the World” travels around the globe to examine the lottery of childbirth. Directed by Brian Hill for the Why Poverty? series, the documentary profiles three impoverished women having babies in the U.S., Cambodia and Sierra Leone and looks at the different options and chances that greet the world’s youngest citizens.”

Tweets:

I think many of us wonder if we did something wrong to cause our #miscarriage. You didn't. It's not your fault. xx

— MiscarriageHelp (@miscarriage_hlp) September 8, 2013

Sad news to report! @JackOsbourne's wife @MrsLisaOsbourne has a later term #miscarriage & lost their baby boy: http://t.co/tmqD597HOz

— Celebrity Baby Scoop (@celeb_babyscoop) September 6, 2013

You miss 100% of the shots you don’t take, unless you’re Todd’s uncle on Breaking Bad last night. He apparently misses every shot.

— Rob Fee (@robfee) September 9, 2013

When you experience moments of having nothing, you learn to appreciate everything.

— Sweet Cheeks (@supertweetjen) September 9, 2013

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Filed Under: Daily, Music, Things I found Tagged: music, photography, Things I found

Art Journal: Forever Always

September 1, 20132 Comments

Art Journal: Forever Always

Forever Always by Isabel G.
Art Journal, Mixed Media
August 31, 2013

I used to be very fond of creating entries in my Art Journal. Before, it was a way to channel any anxious energy and just create something instead of letting pain fester.

I’ll admit, for the longest time, probably since 2006, I left my collage supplies behind and never looked back. My heart didn’t need a reason to create in this way. I stuck to my camera, but even my camera had begun to collect dust.

Yesterday, I found myself in the shower with feelings of deep anger, to the point of rage. At no particular person or thing, just general anger. I was angry at people and circumstances. I knew I needed to do something about it, so, I did. I got out the paper and glue and paint and pastels.

I got my hands dirty. Forgive me, I’m rusty.

XO, Isabel

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Filed Under: Art Journal, Daily, My Work Tagged: Art Journal, collage, heart, mixed media

I’m here, perhaps not present

August 29, 20133 Comments

I’ve not been able to muster the strength to write anything. I’ve written to some privately and have spoken to others.

The truth is, I’m in pain. Emotional, no doubt, but, physical, too. It’s as if every inch of my physical self is manifesting the pain that I feel in my heart. I go through a range of emotions, from sadness to anger. Feeling alone and feeling suffocated. Wanting to move forward and pretend none of this happened. But, it did. I am working through it and it will take time. I know this. I know it all. It doesn’t make it easier to feel. There is only so much Ibuprofen can do.

It will get better, I promise me that.

XO, Isabel

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Filed Under: Daily, Miscarriage Tagged: grief, hope, loss, pain, sadness

What I did today

August 27, 2013Leave a Comment

A while back, after we thought we were in the clear for miscarriage risks, we started looking around and doing our research on baby products. Amazon is a favorite, and so we started working on a private Baby Registry. We never got very far. But today, I deleted it.

Screenshot_8_27_13_11_29_AM

I noticed that there were 7 items in my shopping cart. I checked the items, and it was filled with children’s books, bilingual (Spanish or Hebrew) ones that I had planned on buying for Leo. I was motivated by an article I had recently read on how the brain works with regards to language. How being bilingual or multilingual makes our brains more flexible and that even babies in utero could distinguish language differences. So, I had planned to read books to our son in English and Spanish, because my son would have a flexible brain!

I deleted my cart items, too.

Screenshot_8_27_13_11_32_AM

XO, Isabel

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Filed Under: Leo, Miscarriage, Recurrent Pregnancy Loss Tagged: bilingual, books, hebrew, leo, reading, spanish, wish list, wishes

A broken body

August 26, 20133 Comments

 

Henry Ford Hospital (The Flying Bed) by Frida Kahlo, 1932

Henry Ford Hospital (The Flying Bed) by Frida Kahlo, 1932

Frida Kahlo is one of my favorite artists. Her work is incredibly powerful. Her art, to me, was born out of tragedy, pain and heartache. An eternal ache from love, both for her husband (Diego Rivera) and the babies she loved and wanted, but was unable to have.

This particular piece is of her, lying naked and vulnerable in a hospital bed after having a miscarriage. It’s a boy and she holds in her hand all the connections to the various parts of her experience. From this site, it goes on to explain what each of the items in the image represent. The tear in her eye is obvious, the visible boy in the image is the manifestation of love for her husband, a piece of him that she could never have, Dieguito. The snail representing the slow process that a miscarriage can be, the female torso, the “cruel” looking machine to represent the mechanical part of the whole process, and lastly, the image of her broken pelvis.

This broken pelvis in her world represented an incredible amount of physical pain and I would imagine an incredible amount of emotional pain. For this “broken” part of her took away so much, including her ability to carry a child to term.

With Frida, I identify. In many ways, I always have, on so many different levels. In this specific case, I identify because of my broken body. Outwardly, perhaps no one can tell just how broken it is. My blood holds all my secrets. All my illness. My blood is what contains the clues of how sick I am. How sick I have been.

This is the cause for my Infertility. This is the cause for my miscarriages. This will more than likely be the cause of an earlier-than-hoped-for demise. This is the cause of my feeling so old, even though I am still so young.

Today, I went to a new doctor, an OB/GYN, to follow-up on my D&E procedure that I had almost two weeks ago. I was not able to return to Dr. J. Well, that’s not true, I was more than able, I am unwilling to return to his care, and I use that term quite loosely. I felt from the start that he was not very comfortable with the nature of my high risk pregnancy. He didn’t have to say it outright, I could sense it. I could sense it in his body language. I could sense it in the way he promised to do certain things and never followed through. Why? Well, because this baby would surely die anyway, why bother? That’s the way he made me feel. And many times I wished to leave his practice, but, I felt like I had not choice as we were already so intertwined with his practice and other doctors were already involved in managing my care, that he was mainly only there to check the heartbeat from time to time or just refer me out to someone else.

So, I went out to find a new OB/GYN that would be comfortable with me. That would show me the compassion I so deserve and to also make me feel that they are an integral part on my medical team. Someone, that should I get pregnant again, would be by my side and help guide me and be able to ease me through the anxiety I’d feel should I ever get pregnant again. That won’t think I’m crazy because I want my blood tested every other day in the first few weeks of pregnancy to ensure my pregnancy hormones are going up as they should. Someone that will actually call me and check in after they learn of a loss and not just avoid me or send me away.

After my experience over the past few months, I made a promise to myself. That any professional I would seek out to have on my team, I would speak up and ask direct questions. I did that today. I needed to know if I was within her comfort zone. It’s okay if I wasn’t, I just needed to know now instead of when I needed the care and then felt treated as if I were a dirty dish rag that no one wanted to touch.

As delicately as she could put it; I am beyond her comfort zone. I was lead to believe that I’d be more than likely beyond any OB’s comfort zone. Perhaps I’d be better suited having all prenatal care in the hands of a Maternal Fetal Medicine (MFM) doctor only. I already have one of those, but he, like many MFM doctors, only co-manages care.

And although she didn’t bring it up first, I mentioned surrogacy. And was told that if finances were of no concern, it’s perhaps a more viable option to consider, considering my complications and medical history. This is the second doctor that has had recent contact with me that has said that perhaps surrogacy is an option I should consider. Pregnancy is already hard on one’s body, my body is already working hard enough. Pregnancy will only complicate it more. And afterall, she said, I still have to Mother my child after pregnancy. I got the distinct feeling that what she was saying is that my conditions could risk my life during pregnancy.

Talk about feeling broken.

Broken heart. Broken spirit. Broken body.

XO, Isabel

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Filed Under: Infertility, Recurrent Pregnancy Loss Tagged: art, broken, diabetes, high risk pregnancy

Quote: Yellow by Coldplay

August 24, 2013Leave a Comment

song-quote-xo-isabel-yellow-coldplay

Coldplay, one of my favorite bands. Yellow, one of my favorite songs.

Here are some of my favorite versions of this song, from the original, of course, and beyond:

XO, Isabel

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Filed Under: Daily, Music, Quotes & Images Tagged: coldplay, music, quote, yellow

Poem: Little Leo

August 24, 20136 Comments

While I’ve been working hard on expressing my innermost feelings through writing this blog, my husband has been diligently sitting quietly with his ears filled with music writing. I thought he was simply keeping a journal, instead, he was writing a poem for our son.

He wanted me to share it with you.

/ / / / / / / / / / / / / /

Little Leo

We prayed for strength and courage at the Kotel and Mount Zion,
Leaving notes as maps of hope leading to our little lion.

Monumental was the day we were blessed with this surprise,
Unmistakable the joy and love emblazoned in our eyes.

Along this journey we would stumble but never fall,
Your healthy heartbeat a beacon of hope to all.

I watched your little hand wave hello or maybe it was goodbye,
Eagerly embraced by happiness I would always cry.

Your Mother’s beauty radiates like rays of sunshine,
Playfully peaking around leaves to see this treasure of mine.

Her colossal courage and sacrifices you will never know,
The greatest Mother I could ever want for our Little Leo.

You grew from enduring love and hope to flesh and bone,
My thoughts now tormented by myriads of memories never known.

Perpetually I have cried an ominous river of tears,
Unbridled my anger flows along with my fears.

I feel hopelessly lost in a labyrinth of despair,
Guided only by the pain of knowing that this isn’t fair.

As parents we have so much love to give,
The King in our jungle of memories you will forever live.

Little Leo we will never feel your tranquil touch,
You are eternally etched in our hearts, we love you so much.

XO, Dad

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Filed Under: Judaism, Leo, Loss, Miscarriage, Recurrent Pregnancy Loss Tagged: dad, grief, leo, little lion, love, poem

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Hello. my name is Isabel and this blog is all about my experiences dealing with infertility, recurrent pregnancy loss, and our new adventure as intended parents in our surrogacy journey. Also, a little bit of everything else in my life. Welcome! read more...

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